It changed everything. In 2016, Kyle Osborne was a high school senior in
Albuquerque, New Mexico doing the types of things most boys his age enjoy doing.
He enjoyed playing basketball and soccer for his school team. His dad Aaron was a
pipefitter for 15 years before becoming an estimator. In April, 2016 Kyle’s legs gave
out after experiencing back and leg pain. He went to the ER where an MRI found
17 tumors on his spinal sac and brainstem. The diagnosis was almost unbelievable.
He was diagnosed with myxopapillary ependymoma metastasis.
He is only one of five people in the world with this type of cancer. Doctors decided
to proceed with back surgery, but surgery on his brainstem was too risky. They
removed all the tumors they could and Kyle was wheelchair bound after the
surgery. He went back five months later for a checkup and an MRI found that all
the tumors had completely grown back. Doctors can’t do anything that will make
Kyle situation better, and they have told him that the prognosis is terminal and that
he does not have much time left. Not even Mayo Clinic or St. Jude were options to
battle this type of cancer. Kyle had to miss his prom, so his girlfriend brought prom
to him in the hospital. That was just the beginning of some of the many kind acts
extended to Kyle.
Kyle’s basketball hero is Lebron James, and Kyle’s wish was to meet him. Station
KRQE in Albuquerque aired a story about Kyle and his wish, but as it turned out
the Make-A-Wish foundation said Kyle was too old. That prompted a complete
stranger by the name of Laura Onorato to start a campaign for Kyle with what she
called “a tweet and a prayer.” Her campaign prompted A Special Wish Foundation in Cleveland to contact Kyle’s family. Kyle was told he would be attending game
three of the NBA Eastern conference finals! The trip was threatened when Kyle was
hospitalized for three weeks with a blood infection. His dad was skeptical of Kyle
being able to make the trip to Cleveland, but said Kyle was not giving up on
anything. The wish came true, and Kyle met Lebron James, Charles Barkley and
Shaquille O’Neil before the game. He even left with a signed jersey from Lebron.
In addition to his medical difficulties, Kyle struggles with other, more simple things.
Every day Kyle takes a daily stroll in his wheelchair to the store just to get out of the
house. He is able to use a sidewalk for most of the trip, but there is a 1000 foot
stretch where he is forced to take his wheel chair on to the road. He petitioned the
city of Albuquerque to pave the remaining section, and station KRQE once again
stepped in. The land is undeveloped, but the city worked with the property owner
to put in an asphalt trail until a sidewalk can be put in when the area gets
developed. Kyle’s independence was limited to the distance he could go in his
manual wheelchair, and Kyle was looking for something to enable him to travel
further so we wouldn’t have to rely on his dad to take him everywhere. “My dad is
my only source of transportation,” Kyle wrote. “Having to lift my wheelchair into
the back of his truck all the time is starting to hurt his back, but I think I found
something that will help him,” he continued. That’s when Kyle discovered the
Joseph Groh foundation through his online research. Kyle petitioned the
foundation for a recumbent hand powered tricycle, which would provide him with
both a form of rehabilitation and mobility. “I have a very rare cancer, and they
don’t have anything that will make it better right now,” Kyle told us. “I will keep
fighting and trying to improve my future. The exercise and independence this hand
peddled trike gives me will make me stronger physically and mentally, which will
help me with any trials or other medicines they prescribe which takes a toll on me,”
he said.
Thanks to your continued support, the foundation was able to fund this request.
After receiving the tricycle, Kyle wrote “Thank you so much for the trike! It is
amazing and I feel like I can go anywhere I want to. It is perfect, thank you so
much.”